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Full-Text Articles in Health Communication

A Novel Tool To Improve Shared Decision Making And Adherence In Multiple Sclerosis: Development And Preliminary Testing, Nananda Col, Enrique Alvarez, Vicky Springmann, Carolina Ionete, Idanis Berrios Morales, Andrew Solomon, Christen Kutz, Carolyn Griffin, Brenda Tierman, Terrie Livingston, Michelle Patel, Danny Van Leeuwen, Long Ngo, Lori Pbert Oct 2019

A Novel Tool To Improve Shared Decision Making And Adherence In Multiple Sclerosis: Development And Preliminary Testing, Nananda Col, Enrique Alvarez, Vicky Springmann, Carolina Ionete, Idanis Berrios Morales, Andrew Solomon, Christen Kutz, Carolyn Griffin, Brenda Tierman, Terrie Livingston, Michelle Patel, Danny Van Leeuwen, Long Ngo, Lori Pbert

Open Access Articles

Background. Most people with multiple sclerosis (MS) want to be involved in medical decision making about disease-modifying therapies (DMTs), but new approaches are needed to overcome barriers to participation.

Objectives. We sought to develop a shared decision-making (SDM) tool for MS DMTs, evaluate patient and provider responses to the tool, and address challenges encountered during development to guide a future trial.

Methods. We created a patient-centered design process informed by image theory to develop the MS-SUPPORT SDM tool. Development included semistructured interviews and alpha and beta testing with MS patients and providers. Beta testing assessed dissemination and clinical integration strategies ...


Social Media Use And Hiv Screening Uptake Among Deaf Adults In The United States: Cross-Sectional Survey Study, Michael Argenyi, Poorna Kushalnagar Oct 2019

Social Media Use And Hiv Screening Uptake Among Deaf Adults In The United States: Cross-Sectional Survey Study, Michael Argenyi, Poorna Kushalnagar

Open Access Articles

BACKGROUND: About 46% of US adults obtain recommended HIV screening at least once during their lifetime. There is little knowledge of screening rates among deaf and hard-of-hearing adults who primarily use American Sign Language (ASL), or of social media as a potentially efficacious route for HIV prevention outreach, despite lower HIV/AIDS-specific health literacy and potentially higher HIV seropositivity rates than hearing peers.

OBJECTIVE: We investigated both the likelihood of HIV screening uptake among deaf adults in the past year and over one year ago, and the relationship between social media use and HIV screening uptake among deaf adult ASL ...


Mhealth Technologies For Osteoarthritis Self-Management And Treatment: A Systematic Review, Wonchan Choi, Hua Zheng, Patricia D. Franklin, Bengisu Tulu Sep 2019

Mhealth Technologies For Osteoarthritis Self-Management And Treatment: A Systematic Review, Wonchan Choi, Hua Zheng, Patricia D. Franklin, Bengisu Tulu

Open Access Articles

Osteoarthritis is a common chronic disease that can be better treated with the help of self-management interventions. Mobile health (mHealth) technologies are becoming a popular means to deliver such interventions. We reviewed the current state of research and development of mHealth technologies for osteoarthritis self-management to determine gaps future research could address. We conducted a systematic review of English articles and a survey of apps available in the marketplace as of 2016. Among 117 unique articles identified, 25 articles that met our inclusion criteria were reviewed in-depth. The app search identified 23 relevant apps for osteoarthritis self-management. Through the synthesis ...


Outcomes And Outcome Measures Used In Evaluation Of Communication Training In Oncology - A Systematic Literature Review, An Expert Workshop, And Recommendations For Future Research, F. Fischer, S. Helmer, A. Rogge, J. I. Arraras, A. Buchholz, A. Hannawa, M. Horneber, A. Kiss, Matthias S. F. Rose, W. Sollner, B. Stein, J. Weis, P. Schofield, C. M. Witt Aug 2019

Outcomes And Outcome Measures Used In Evaluation Of Communication Training In Oncology - A Systematic Literature Review, An Expert Workshop, And Recommendations For Future Research, F. Fischer, S. Helmer, A. Rogge, J. I. Arraras, A. Buchholz, A. Hannawa, M. Horneber, A. Kiss, Matthias S. F. Rose, W. Sollner, B. Stein, J. Weis, P. Schofield, C. M. Witt

Open Access Articles

BACKGROUND: Communication between health care provider and patients in oncology presents challenges. Communication skills training have been frequently developed to address those. Given the complexity of communication training, the choice of outcomes and outcome measures to assess its effectiveness is important. The aim of this paper is to 1) perform a systematic review on outcomes and outcome measures used in evaluations of communication training, 2) discuss specific challenges and 3) provide recommendations for the selection of outcomes in future studies.

METHODS: To identify studies and reviews reporting on the evaluation of communication training for health care professionals in oncology, we ...


Automated Text Messaging With Patients In Department Of Veterans Affairs Specialty Clinics: Cluster Randomized Trial, Vera Yakovchenko, Timothy P. Hogan, Thomas K. Houston, Lorilei Richardson, Jessica Lipschitz, Beth Ann Petrakis, Chris Gillespie, D. Keith Mcinnes Aug 2019

Automated Text Messaging With Patients In Department Of Veterans Affairs Specialty Clinics: Cluster Randomized Trial, Vera Yakovchenko, Timothy P. Hogan, Thomas K. Houston, Lorilei Richardson, Jessica Lipschitz, Beth Ann Petrakis, Chris Gillespie, D. Keith Mcinnes

Open Access Articles

BACKGROUND: Acceptability of mobile phone text messaging as a means of asynchronous communication between health care systems and patients is growing. The US Department of Veterans Affairs (VA) has adopted an automated texting system (aTS) for national rollout. The aTS allows providers to develop clinical texting protocols to promote patient self-management and allows clinical teams to monitor patient progress between in-person visits. Texting-supported hepatitis C virus (HCV) treatment has not been previously tested.

OBJECTIVE: Guided by the Practical, Robust Implementation and Sustainability Model (PRISM), we developed an aTS HCV protocol and conducted a mixed methods, hybrid type 2 effectiveness implementation ...


Dissemination And Effectiveness Of The Peer Marketing And Messaging Of A Web-Assisted Tobacco Intervention: Protocol For A Hybrid Effectiveness Trial, Jamie Faro, Elizabeth Aaker Orvek, Amanda C. Blok, Catherine S. Nagawa, Annalise J. Mcdonald, Gregory Seward, Thomas K. Houston, Ariana Kamberi, Jeroan J. Allison, Sharina D. Person, Tina Grosowsky, Rajani S. Sadasivam Jul 2019

Dissemination And Effectiveness Of The Peer Marketing And Messaging Of A Web-Assisted Tobacco Intervention: Protocol For A Hybrid Effectiveness Trial, Jamie Faro, Elizabeth Aaker Orvek, Amanda C. Blok, Catherine S. Nagawa, Annalise J. Mcdonald, Gregory Seward, Thomas K. Houston, Ariana Kamberi, Jeroan J. Allison, Sharina D. Person, Tina Grosowsky, Rajani S. Sadasivam

Open Access Articles

BACKGROUND: Smoking continues to be the leading preventable cause of death. Digital Interventions for Smoking Cessation (DISCs) are health communication programs accessible via the internet and smartphones and allow for greater reach and effectiveness of tobacco cessation programs. DISCs have led to increased 6-month cessation rates while also reaching vulnerable populations. Despite this, the impact of DISCs has been limited and new ways to increase access and effectiveness are needed.

OBJECTIVE: We are conducting a hybrid effectiveness-dissemination study. We aim to evaluate the effectiveness of a machine learning-based approach (recommender system) for computer-tailored health communication (CTHC) over a standard CTHC ...


How Do Patients With Mental Health Diagnoses Use Online Patient Portals? An Observational Analysis From The Veterans Health Administration, Bella Etingen, Timothy P. Hogan, Rachael N. Martinez, Stephanie L. Shimada, Kevin Stroupe, Kim Nazi, Samantha L. Connolly, Jessica Lipschitz, Frances M. Weaver, Bridget Smith May 2019

How Do Patients With Mental Health Diagnoses Use Online Patient Portals? An Observational Analysis From The Veterans Health Administration, Bella Etingen, Timothy P. Hogan, Rachael N. Martinez, Stephanie L. Shimada, Kevin Stroupe, Kim Nazi, Samantha L. Connolly, Jessica Lipschitz, Frances M. Weaver, Bridget Smith

Population and Quantitative Health Sciences Publications

Online patient portals may be effective for engaging patients with mental health conditions in their own health care. This retrospective database analysis reports patient portal use among Veterans with mental health diagnoses. Unadjusted and adjusted odds of portal feature use was calculated using logistic regressions. Having experienced military sexual trauma or having an anxiety disorder, post-traumatic stress disorder, or depression were associated with increased odds of portal use; bipolar, substance use, psychotic and adjustment disorders were associated with decreased odds. Future research should examine factors that influence portal use to understand diagnosis-level differences and improve engagement with such tools.


Optimizing Learner Accessibility: Adding American Sign Language (Asl) And Text-To-Speech To Online Trainings, Sarah Rulnick, John Rochford, Derek Chaves, Benjamin Amankwata, Viet Do, Mabelys Rodriguez Mar 2019

Optimizing Learner Accessibility: Adding American Sign Language (Asl) And Text-To-Speech To Online Trainings, Sarah Rulnick, John Rochford, Derek Chaves, Benjamin Amankwata, Viet Do, Mabelys Rodriguez

Community Engagement and Research Symposia

The Child and Adolescent Needs and Strengths (CANS) Training Program is located at the Eunice K. Shriver Center at the University of Massachusetts Medical School in Worcester, MA. The CANS Training Program provides training and certification services for the Executive Office of Health and Human Services (EOHHS), MassHealth, Children's Behavioral Health Initiative (CBHI). Massachusetts behavioral health providers are required to be CANS certified in order to see Medicaid insured children and youth under the age of 21. The CANS Training Program has trained and certified over 26,000 behavioral health providers throughout Massachusetts in the use of the Child ...


Engaging African Immigrants In Addressing Hiv Disparities Within The Population, Lorraine Anyango, Mbita Mbao, Dara Oloyede Mar 2019

Engaging African Immigrants In Addressing Hiv Disparities Within The Population, Lorraine Anyango, Mbita Mbao, Dara Oloyede

Community Engagement and Research Symposia

The Tulumbe! Partnership was created with funds from the Pipeline to Proposal (P2P) awards established by the Patient-Centered Outcomes Research Institute (PCORI). The P2P awards were designed to develop partnerships; promote patient engagement; and build patient-led research proposals. Tulumbe! has spent the last two years working to engage the African immigrant community in addressing issues related to HIV, specifically focusing on identifying research topics and questions 3 that are important to community members. There are currently 10 core members representing health providers, African immigrants living with HIV, advocates, researchers and community leaders.

Tulumbe! has utilized various approaches to engage African ...


Video-Based Communication Assessment: Development Of An Innovative System For Assessing Clinician-Patient Communication, Kathleen M. Mazor, Ann M. King, Ruth B. Hoppe, Annie O. Kochersberger, Jie Yan, Jesse D. Reim Feb 2019

Video-Based Communication Assessment: Development Of An Innovative System For Assessing Clinician-Patient Communication, Kathleen M. Mazor, Ann M. King, Ruth B. Hoppe, Annie O. Kochersberger, Jie Yan, Jesse D. Reim

Open Access Articles

Good clinician-patient communication is essential to provide quality health care and is key to patient-centered care. However, individuals and organizations seeking to improve in this area face significant challenges. A major barrier is the absence of an efficient system for assessing clinicians' communication skills and providing meaningful, individual-level feedback. The purpose of this paper is to describe the design and creation of the Video-Based Communication Assessment (VCA), an innovative, flexible system for assessing and ultimately enhancing clinicians' communication skills. We began by developing the VCA concept. Specifically, we determined that it should be convenient and efficient, accessible via computer, tablet ...


Improving Efficiency And Communication Around Sedated Fracture Reductions In A Pediatric Emergency Department, Niloufar Paydar-Darian, Michael P. Goldman, Kenneth A. Michelson, Katharine C. Button, Elizabeth K. Hewett, Theodore Macnow, Andrew F. Miller, Megan A. Musisca, Joel D. Hudgins, Matthew A. Eisenberg Feb 2019

Improving Efficiency And Communication Around Sedated Fracture Reductions In A Pediatric Emergency Department, Niloufar Paydar-Darian, Michael P. Goldman, Kenneth A. Michelson, Katharine C. Button, Elizabeth K. Hewett, Theodore Macnow, Andrew F. Miller, Megan A. Musisca, Joel D. Hudgins, Matthew A. Eisenberg

Pediatric Publications and Presentations

Introduction: Procedural sedation for fracture reduction in the pediatric emergency department (ED) is a time-consuming process requiring multidisciplinary coordination. We implemented a quality improvement initiative aimed at (1) decreasing mean ED length of stay (LOS) for children with sedated long bone fracture reductions by 15% over 12 months and (2) improving interdisciplinary communication around procedural sedation.

Methods: Pediatric emergency medicine fellows at a children's hospital designed and implemented an initiative targeting the efficiency of the sedation process. Interventions included a centralized sedation tracking board, a team member responsibility checklist, family handouts, early discharge initiatives, and postsedation review forms. We ...


Use Of Electronic Health Record Access And Audit Logs To Identify Physician Actions Following Noninterruptive Alert Opening: Descriptive Study, Azraa Amroze, Terry S. Field, Hassan Fouayzi, Devi Sundaresan, Laura Burns, Lawrence Garber, Rajani S. Sadasivam, Kathleen M. Mazor, Jerry H. Gurwitz, Sarah L. Cutrona Feb 2019

Use Of Electronic Health Record Access And Audit Logs To Identify Physician Actions Following Noninterruptive Alert Opening: Descriptive Study, Azraa Amroze, Terry S. Field, Hassan Fouayzi, Devi Sundaresan, Laura Burns, Lawrence Garber, Rajani S. Sadasivam, Kathleen M. Mazor, Jerry H. Gurwitz, Sarah L. Cutrona

Open Access Articles

BACKGROUND: Electronic health record (EHR) access and audit logs record behaviors of providers as they navigate the EHR. These data can be used to better understand provider responses to EHR-based clinical decision support (CDS), shedding light on whether and why CDS is effective.

OBJECTIVE: This study aimed to determine the feasibility of using EHR access and audit logs to track primary care physicians' (PCPs') opening of and response to noninterruptive alerts delivered to EHR InBaskets.

METHODS: We conducted a descriptive study to assess the use of EHR log data to track provider behavior. We analyzed data recorded following opening of ...


Time To Listen More And Talk Less, Barbara G. Bokhour, Sarah L. Cutrona Jan 2019

Time To Listen More And Talk Less, Barbara G. Bokhour, Sarah L. Cutrona

Population and Quantitative Health Sciences Publications

Submitted as Invited Editorial response to Singh Ospina et. al. Eliciting the Patient’s Agenda – Secondary Analysis of Recorded Clinical Encounters. In 1984, Elliot Mishler published a book called the Discourse of Medicine in which he argued that patients and providers bring different stories to a clinical encounter—the former reflecting the world in which the patient manages their health and illness and the latter reflecting the biomedical definitions of disease and treatment. He showed that providers far too often interrupt the patient stories in favor of a more biomedical version of the person in front of them. It was ...


Engagement In Family Screening For Hypertrophic Cardiomyopathy, Michelle G. Glowny Dec 2018

Engagement In Family Screening For Hypertrophic Cardiomyopathy, Michelle G. Glowny

Graduate School of Nursing Dissertations

Background: Despite consensus guidelines, only about half of at-risk relatives in families with Hypertrophic Cardiomyopathy (HCM) undergo clinical screening and even fewer undergo predictive genetic testing, leaving those unscreened at risk for sudden cardiac death. The use of qualitative inquiry to examine family communication and complex factors influencing uptake of screening may inform interventions to increase uptake and prevent sudden cardiac death.

Purpose: The purpose of this study was to describe the engagement of at-risk relatives in family screening for HCM.

Specific Aims: The specific aims were to (1) Describe the experience of communication of genetic risk of HCM in ...


Deaf And Hard-Of-Hearing Learners In Emergency Medicine, Lisa M. Meeks, Alina Engelman, Alicia Booth, Michael Argenyi Nov 2018

Deaf And Hard-Of-Hearing Learners In Emergency Medicine, Lisa M. Meeks, Alina Engelman, Alicia Booth, Michael Argenyi

Open Access Articles

Approximately 23% of Americans over age 12 have some level of hearing loss.1 Emergency departments can reduce healthcare barriers for deaf and hard-of-hearing (DHoH) patients through improved patient-physician communication. DHoH students, once they become physicians, may provide one mechanism for reducing existing healthcare disparities and communication barriers for DHoH patients, and may be more adept with patients facing other communication barriers. A renewed interest in disability access and a commitment to social justice has increased efforts toward the inclusion of individuals with disabilities in medical education and training. Despite this increased interest and a growing number of DHoH students ...


Development And Validation Of A Weight Literacy Scale In English And Spanish, Monica L. Wang, Tariana V. Little, Christine F. Frisard, Amy Borg, Stephenie C. Lemon, Milagros C. Rosal Oct 2018

Development And Validation Of A Weight Literacy Scale In English And Spanish, Monica L. Wang, Tariana V. Little, Christine F. Frisard, Amy Borg, Stephenie C. Lemon, Milagros C. Rosal

Open Access Articles

OBJECTIVES: To develop and validate a Weight Literacy Scale in English and Spanish for adults.

METHODS: The two-phase study utilized quantitative and qualitative methods. Phase 1 of the study consisted of developing an initial survey (English and Spanish versions) assessing weight literacy based on a review of the literature; conducting semi-structured interviews with content experts (N = 9) to refine survey items; and conducting in-person cognitive interviews with 20 study participants (N = 10 English-speaking and N = 10 Spanish-speaking adults) for survey pre-testing. Survey items were modified based on Phase 1 findings. Phase 2 consisted of a psychometric study of the Weight ...


Health Information Discrepancies Between Internet Media And Scientific Papers Reporting On Omega-3 Supplement Research: Comparative Analysis, Daryl Nault, Ariel Beccia, Haruka Ito, Sarah Kashdan, Angela Senders Oct 2018

Health Information Discrepancies Between Internet Media And Scientific Papers Reporting On Omega-3 Supplement Research: Comparative Analysis, Daryl Nault, Ariel Beccia, Haruka Ito, Sarah Kashdan, Angela Senders

Open Access Articles

BACKGROUND: Dietary supplements are the most used complementary and alternative health modality in the United States, and omega-3 supplements continue to be the most popularly used nonvitamin or nonmineral supplements by adults. Users of dietary supplements report that they obtain health guidance from internet media resources, but there is question as to whether or not these resources provide the necessary evidence to guide health decisions. Current evidence suggests that there is a mistranslation occurring somewhere between researchers and the media.

OBJECTIVE: The aim of this study was to conduct a comparative cross-sectional analysis to identify areas of discordance created when ...


Adapting A Behavioral Weight Loss Intervention For Delivery Via Facebook: A Pilot Series Among Low-Income Postpartum Women, Valerie J. Silfee, Andrea Lopez-Cepero, Stephenie C. Lemon, Barbara Estabrook, Oanh Nguyen, Monica L. Wang, Milagros C. Rosal Sep 2018

Adapting A Behavioral Weight Loss Intervention For Delivery Via Facebook: A Pilot Series Among Low-Income Postpartum Women, Valerie J. Silfee, Andrea Lopez-Cepero, Stephenie C. Lemon, Barbara Estabrook, Oanh Nguyen, Monica L. Wang, Milagros C. Rosal

UMass Worcester PRC Publications

BACKGROUND: Efforts to translate evidence-based weight loss interventions, such as the Diabetes Prevention Program (DPP), to low-income postpartum women have resulted in poor intervention attendance and high attrition. Strategies that improve engagement and retention in this population are needed to maximize the reach of evidence-based weight loss interventions.

OBJECTIVE: The objective of this study was to adapt a DPP-based weight loss intervention (Fresh Start) for Facebook delivery and to evaluate its feasibility among low-income postpartum women.

METHODS: This study comprised 3 single-group pilot studies where feasibility outcomes iteratively informed changes from one pilot to the next. We paralleled the in-person ...


Facilitating Hiv/Aids And Hiv Testing Literacy For Emergency Department Patients: A Randomized, Controlled, Trial, Roland C. Merchant, Tao Liu, Melissa A. Clark, Michael P. Carey Jul 2018

Facilitating Hiv/Aids And Hiv Testing Literacy For Emergency Department Patients: A Randomized, Controlled, Trial, Roland C. Merchant, Tao Liu, Melissa A. Clark, Michael P. Carey

Population and Quantitative Health Sciences Publications

BACKGROUND: Although this has not been fully studied, videos and pictorial brochures might be equivalent methods of delivering HIV/AIDS and HIV testing information to emergency departments (ED) patients. It also is not known how well or for how long such knowledge is retained, if this information should be tailored according to patient health literacy, and if retention of this knowledge impacts future HIV testing behavior.

METHODS: We will conduct a multi-site, randomized, controlled, longitudinal trial among 600 English- and 600 Spanish-speaking 18-64-year-old ED patients to investigate these questions. We will stratify our sample within language (English vs. Spanish) by ...


Patient Centeredness In Electronic Communication: Evaluation Of Patient-To-Health Care Team Secure Messaging, Timothy P. Hogan, Tana M. Luger, Julie E. Volkman, Mary Rocheleau, Nora Mueller, Anna M. Barker, Kim M. Nazi, Thomas K. Houston, Barbara G. Bokhour Mar 2018

Patient Centeredness In Electronic Communication: Evaluation Of Patient-To-Health Care Team Secure Messaging, Timothy P. Hogan, Tana M. Luger, Julie E. Volkman, Mary Rocheleau, Nora Mueller, Anna M. Barker, Kim M. Nazi, Thomas K. Houston, Barbara G. Bokhour

Population and Quantitative Health Sciences Publications

BACKGROUND: As information and communication technology is becoming more widely implemented across health care organizations, patient-provider email or asynchronous electronic secure messaging has the potential to support patient-centered communication. Within the medical home model of the Veterans Health Administration (VA), secure messaging is envisioned as a means to enhance access and strengthen the relationships between veterans and their health care team members. However, despite previous studies that have examined the content of electronic messages exchanged between patients and health care providers, less research has focused on the socioemotional aspects of the communication enacted through those messages.

OBJECTIVE: Recognizing the potential ...


Using Data To Guide And Evaluate Responses To The Opioid Crisis: Rhode Island's Drug Overdose Dashboard, Brandon Marshall Mar 2018

Using Data To Guide And Evaluate Responses To The Opioid Crisis: Rhode Island's Drug Overdose Dashboard, Brandon Marshall

National Network of Libraries of Medicine New England Region (NNLM NER) Repository

The rapidly evolving nature of the nation’s overdose epidemic necessitates the dissemination of timely information to inform effective public health responses. Unfortunately, many overdose surveillance systems suffer from delays in reporting and other logistical challenges. In this webinar, Dr. Brandon Marshall from the Brown University School of Public Health will discuss Rhode Island’s drug overdose information and surveillance “dashboard”, PreventOverdoseRI.org. Participants will learn how the timely analysis and public dissemination of data being used to guide and evaluate policy and public health response to the overdose crisis in Rhode Island.

Learning Objectives:

Participant will:

  1. Learn about national ...


A Natural Language Processing System That Links Medical Terms In Electronic Health Record Notes To Lay Definitions: System Development Using Physician Reviews, Jinying Chen, Emily Druhl, Balaji Polepalli Ramesh, Thomas K. Houston, Cynthia A. Brandt, Donna M. Zulman, Varsha G. Vimalananda, Samir Malkani, Hong Yu Jan 2018

A Natural Language Processing System That Links Medical Terms In Electronic Health Record Notes To Lay Definitions: System Development Using Physician Reviews, Jinying Chen, Emily Druhl, Balaji Polepalli Ramesh, Thomas K. Houston, Cynthia A. Brandt, Donna M. Zulman, Varsha G. Vimalananda, Samir Malkani, Hong Yu

Population and Quantitative Health Sciences Publications

BACKGROUND: Many health care systems now allow patients to access their electronic health record (EHR) notes online through patient portals. Medical jargon in EHR notes can confuse patients, which may interfere with potential benefits of patient access to EHR notes.

OBJECTIVE: The aim of this study was to develop and evaluate the usability and content quality of NoteAid, a Web-based natural language processing system that links medical terms in EHR notes to lay definitions, that is, definitions easily understood by lay people.

METHODS: NoteAid incorporates two core components: CoDeMed, a lexical resource of lay definitions for medical terms, and MedLink ...


How The National Library Of Medicine Can Add Evidence To Your Mhealth App, Susan Halpin, Sherry Pagoto Nov 2017

How The National Library Of Medicine Can Add Evidence To Your Mhealth App, Susan Halpin, Sherry Pagoto

National Network of Libraries of Medicine New England Region (NNLM NER) Repository

Numerous systematic reviews of health-related mobile apps reveal they lack evidence based content. A major challenge to including evidence based content in apps is how to efficiently find accurate, credible, and vetted content. The National Library of Medicine houses the largest biomedical library in the world and provides numerous expert-developed online resources on disease and health education. In this webinar, Susan Halpin of the National Library of Medicine will introduce attendees to those resources, give examples of how they can and have been used in mobile apps, and discuss funding opportunities offered by the NLM.


Teens, Tweets, And Tanning Beds: Rethinking The Use Of Social Media For Skin Cancer Prevention, Ashley E. Falzone, Claire D. Brindis, Mary-Margaret Chren, Alexandra Junn, Sherry L. Pagoto, Mackenzie Wehner, Eleni Linos Sep 2017

Teens, Tweets, And Tanning Beds: Rethinking The Use Of Social Media For Skin Cancer Prevention, Ashley E. Falzone, Claire D. Brindis, Mary-Margaret Chren, Alexandra Junn, Sherry L. Pagoto, Mackenzie Wehner, Eleni Linos

Open Access Articles

The incidence of skin cancer is rising in the U.S., and melanoma, the deadliest form, is increasing disproportionately among young white women. Indoor tanning is a modifiable risk factor for all skin cancers and continues to be used at the highest rates in young white women. Adolescents and young adults report personal appearance-based reasons for using indoor tanning. Previous research has explored the influences on tanning bed use, including individual factors as well as relationships with peers, family, schools, media influences, legislation, and societal beauty norms. Adolescents and young adults also have high rates of social media usage, and ...


Implementing An Online Health Information Platform For People With Serious Mental Illness, Zlatina Kostova, Len L. Levin, Mahima Sindhu, Joanne Nicholson, Kathleen Biebel, Elaine R. Martin Aug 2017

Implementing An Online Health Information Platform For People With Serious Mental Illness, Zlatina Kostova, Len L. Levin, Mahima Sindhu, Joanne Nicholson, Kathleen Biebel, Elaine R. Martin

Library Publications and Presentations

Introduction: Individuals with serious mental illness (SMI) die, on average, 25 years earlier than the general population. Higher rates of smoking, alcohol consumption, poor nutrition, lack of physical activity, obesity, lack of preventive healthcare, and other modifiable risk factors, as well as side effects associated with certain antipsychotic medications, place individuals with SMI at high physical health risk. They are designated a health disparity population by the US National Association of State Mental Health Program Directors and as a vulnerable group worldwide by the World Health Organization. While the Internet provides intriguing opportunities to support person-centered health care, web-based resources ...


Misperceptions And The Misused Language Of Addiction: Words Matter, Richard Saitz Aug 2017

Misperceptions And The Misused Language Of Addiction: Words Matter, Richard Saitz

National Network of Libraries of Medicine New England Region (NNLM NER) Repository

Despite recognition of addiction as a health condition, terminology used in both layperson and scientific publications is often inaccurate and stigmatizing. National and international efforts are now afoot to encourage the use of terminology that can improve accuracy, reduce stigma, and even improve care. Dr. Richard Saitz from the Boston University School of Public Health will discuss the rationale for terms that should and should not be preferred.


Health Related Web Site Usage By Persons With Serious Mental Illness: Design And Use Of A Heath Literacy Survey Tool, Len L. Levin, Zlatina Kostova, Joanne Nicholson, Kathleen Biebel, Elaine R. Martin May 2017

Health Related Web Site Usage By Persons With Serious Mental Illness: Design And Use Of A Heath Literacy Survey Tool, Len L. Levin, Zlatina Kostova, Joanne Nicholson, Kathleen Biebel, Elaine R. Martin

Library Publications and Presentations

Objectives: A health literacy focused web site review survey was designed as an initial step in a multi-institutional project to build a website for persons with serious mental illness to help them better understand issues relating to their physical health. This presentation will describe the design, testing, implementation and results of this survey tool.

Methods: The literature shows that persons with serious mental illness (SMI) approach the use of online health information differently than the general population. In 2015, the University of Massachusetts, in collaboration with other academic medical institutions, received a grant to build a new website for persons ...


Recruiting Low Income Post-Partum Women Into A Weight Loss Trial: In-Person Versus Facebook Delivery, Valerie J. Silfee, Andrea Lopez-Cepero, Stephenie C. Lemon, Milagros C. Rosal May 2017

Recruiting Low Income Post-Partum Women Into A Weight Loss Trial: In-Person Versus Facebook Delivery, Valerie J. Silfee, Andrea Lopez-Cepero, Stephenie C. Lemon, Milagros C. Rosal

UMass Center for Clinical and Translational Science Research Retreat

Several studies, such as the Diabetes Prevention Program (DPP), have provided foundational evidence for the effect of lifestyle modification interventions on diabetes prevention and weight loss. However, translating these programs to the real-world has proven difficult. There remains a need to increase the feasibility and reach of translational weight loss interventions.

PURPOSE: To compare the recruitment rates of overweight low income postpartum women into a DPP-adapted behavioral weight loss program delivered in-person versus delivered via Facebook.

METHODS: We compared two 8-week pilot behavioral weight loss trials; one delivered via weekly in-person group sessions and the other delivered entirely via Facebook ...


Testing A Novel Manual Communication System For Mechanically Ventilated Icu Patients, Miriam A. Goldberg, Leigh R. Hochberg, Dawn Carpenter, Johnny L. Isenberger, Stephen O. Heard, J. Matthias Walz May 2017

Testing A Novel Manual Communication System For Mechanically Ventilated Icu Patients, Miriam A. Goldberg, Leigh R. Hochberg, Dawn Carpenter, Johnny L. Isenberger, Stephen O. Heard, J. Matthias Walz

UMass Center for Clinical and Translational Science Research Retreat

Introduction: Available communication methods for intubated patients in the ICU are insufficient to meet patient needs. Both ICU patients and their care providers report broadly unsuccessful communication attempts, resulting in less effective medical care and undue stress1,2. Use of existing methods - including letter boards, writing, and mouthing words - for mechanically ventilated (MV) patients has led to a consensus that new methods are required3. We report on the testing of a new system designed to address the communication needs of MV patients that is currently being tested in a low- to medium- acuity surgical ICU4.

Methods: We ...


Principles Of Augmentative And Alternative Communication System Design In The Icu Setting, Miriam A. Goldberg, Leigh R. Hochberg, Dawn Carpenter, Johnny L. Isenberger, Stephen O. Heard, J. Matthias Walz May 2017

Principles Of Augmentative And Alternative Communication System Design In The Icu Setting, Miriam A. Goldberg, Leigh R. Hochberg, Dawn Carpenter, Johnny L. Isenberger, Stephen O. Heard, J. Matthias Walz

UMass Center for Clinical and Translational Science Research Retreat

Introduction: The ICU as a technology design setting requires specific and thoughtful awareness of patient-, caregiver-, and environment-related constraints. Designing an ICU-specific communication system involves an even deeper understanding of patient needs and desires, building on existing work exploring available technologies for use in this setting1,2. We report our initial experience from a pilot study with a novel communication device engineered specifically to allow mechanically ventilated ICU patients to communicate with caregivers3.

Methods: We used a validated survey for nurses about communication purposes to explore relevant beliefs, attitudes, and desires of nurses4. Existing technologies available for ...